MGfC Clinical Experts Lead International Myhre Syndrome Conference
Tapping expertise from Mass General for Children, the Myhre Syndrome Foundation launched its inaugural conference on July 10-11, 2021.
Patient EducationAug | 15 | 2019
Welcome to the Myhre Syndrome Clinic at Mass General for Children (MGfC) and Massachusetts General Hospital! Learn what to expect and how to prepare before the first appointment, and meet members of the care team.
If you or your child are seeing many doctors, the first day takes about 4 hours total. Appointments with Genetics and Pediatric Cardiology take at least 1 hour each.
Yes. Please ask Dr. Lin if you want to learn about research on Myhre syndrome at MGfC and Mass General. Taking part in research is your choice. It will not affect your or your child’s care.
Learn more about parking and staying in Boston (PDF).
With joint leadership between Medical Genetics and Pediatric Cardiology, we have assembled a multidisciplinary team of medical, radiology and psychosocial support. Learn more.
Co-Directors: Angela E. Lin, MD, Medical Genetics and Mark E. Lindsay, MD, PhD, Pediatric Cardiology
Patient resources for the Myhre Syndrome Clinic
Tapping expertise from Mass General for Children, the Myhre Syndrome Foundation launched its inaugural conference on July 10-11, 2021.
Certain breathing problems are common in people with Myhre syndrome. Learn about breathing problems and how doctors diagnose and treat them in people with Myhre syndrome.
Practical information to help a primary care physician (PCP) care for their patient and anticipate future needs.
At the Myhre Syndrome Clinic, we are happy to help patients and families from all around the world. Medical care is different in every country. Learn important things to consider before scheduling your appointment.
Constipation can make it uncomfortable to use the bathroom. In turn, an unpleasant experience with toileting can affect behavior, especially for young children.
April Lanord's son, Alec Bruneau, was considered a medical mystery until he received a diagnosis of Myhre Syndrome, a very rare genetic condition, during childhood. Since coming to the Myhre Syndrome Clinic, Alec has found a new sense of confidence and comfort in who he is.