MGfC Clinical Experts Lead International Myhre Syndrome Conference
Tapping expertise from Mass General for Children, the Myhre Syndrome Foundation launched its inaugural conference on July 10-11, 2021.
Patient EducationJul | 8 | 2019
At the Myhre Syndrome Clinic, we are happy to help patients and families from all around the world. Medical care is different in every country. Learn important things to consider before scheduling your appointment.
Angela Lin, MD, co-director of the Myhre Syndrome Clinic, will connect you to the International Patient Center at Mass General and MGfC. Our front desk staff will contact you to schedule the appointment.
It depends on your or your child’s needs and symptoms. You will receive this information and more information about Myhre syndrome in the mail before your appointment.
In some cases, you and your local doctor may be able to get a formal, written second opinion from Dr. Lin. We call these Remote Second Opinions. Learn more about getting a remote second opinion.
Right now, there are no clinical drug trials for patients to take part in. However, there are several research studies you can learn about if you are seen.
Rev. 7/2021. Mass General for Children and Massachusetts General Hospital do not endorse any of the brands listed on this handout. This handout is intended to provide health information so that you can be better informed. It is not a substitute for medical advice and should not be used to treatment of any medical conditions.
Patient resources for the Myhre Syndrome Clinic
Tapping expertise from Mass General for Children, the Myhre Syndrome Foundation launched its inaugural conference on July 10-11, 2021.
Certain breathing problems are common in people with Myhre syndrome. Learn about breathing problems and how doctors diagnose and treat them in people with Myhre syndrome.
Practical information to help a primary care physician (PCP) care for their patient and anticipate future needs.
Welcome to the Myhre Syndrome Clinic at Mass General for Children (MGfC) and Massachusetts General Hospital! Learn what to expect and how to prepare before the first appointment, and meet members of the care team.
Constipation can make it uncomfortable to use the bathroom. In turn, an unpleasant experience with toileting can affect behavior, especially for young children.
April Lanord's son, Alec Bruneau, was considered a medical mystery until he received a diagnosis of Myhre Syndrome, a very rare genetic condition, during childhood. Since coming to the Myhre Syndrome Clinic, Alec has found a new sense of confidence and comfort in who he is.
Request an appointment or second opinion, refer a patient, find a doctor or view test results with MGfC's secure online services.