These webinars and recorded symposium presentations are designed to complement our other patient education materials.
HEALEY ALS Platform Trial Community Webinars
Healey & AMG Center investigators hold informal Q&A sessions about the HEALEY ALS Platform Trial, as well as monthly comprehensive updates.
Monthly Expanded Access Webinars
Join us on the second Thursday of each month to discuss news and updates about Expanded Access Protocols (EAPs) in the field of ALS research.
Other Videos & Webinars
Mass General also recommends videos from EverythingALS and the series of educational webinars produced by the Northeast ALS Consortium (NEALS), covering a wide variety of research and care topics.
Archived Webinar Recordings
COVID-19 and ALS at Mass General
After Lunch Series ALS Webinars
Demystifying Palliative Care
Mass General physician and researcher Kate Brizzi, MD, joins Hannah Zivalic, RN, and Judi Carey, RN, to discuss palliative care and its benefits for ALS patients. They also explore what happens during a palliative care visit, and explain the difference between palliative care and hospice.
Parenting at a Challenging Time: ALS PACT
PACT supports families as their children adjust to a parent’s ALS diagnosis, and helps parents meet their children’s practical and emotional needs.
Cals for pALS
People with ALS often have a hard time getting enough calories. Learn how you can make sure your body gets the nutrients you need.
Welcome to Our House: Tips and Tricks for Navigating Your Home
Nurses from the Healey Center for ALS at Mass General present tips to help you navigate your home safely, including ways to prevent falls and tools you can use to preserve independent living.
Introducing Radicava
Learn about Radicava (Edaravone) an infusion medication that can slow ALS progression, including the research behind it and how it’s administered.
The G-Tube Talk
A presentation of patient options about the use of a gastrotomy tube (G-Tube, feeding tube).
Your Day: ALS Care and Research Symposium
On Saturday, October 30th 2021, Dr. Merit Cudkowicz and Dr. James Berry hosted the annual Your Day: ALS Care and Research Symposium. The latest updates in ALS research and care were presented by Drs. Merit Cudkowicz, James Berry, Sabrina Paganoni, Suma Babu, Katie Nicholson, Sarah Luppino, NP and Jennifer Scalia, NP.
Earlier recordings:
Patient & Family Resources
Our patient and family resources can help you understand and manage life with ALS.
The Future of ALS Clinical Trials
Merit Cudkowicz, MD, MSc, visits the Connecting ALS Podcast to discuss the impact of COVID-19 on clinical trials like the HEALEY ALS Platform Trial.
Clinical Trial Options at Mass General
At the Sean M. Healey and AMG Center for ALS, we are committed to radical change and acceleration of converting ALS research into enduring treatments.
Stay Up to Date
Subscribe to the ALS Link for news and updates about research and care at the Healey Center for ALS.