Lurie Center for Autism Patient Resources

At the Lurie Center for Autism, our mission is to treat individuals and support their families across their lifespan. The resources and information provided here aim to address common questions and concerns about ASD with evidence-based answers that have been reviewed by credentialed professionals on our staff. Our goal is to continually update this material as new information is discovered, evidence develops, and new research is published. Click the links below to view and download helpful guides.

Visiting the Lurie Center

• Meet the Lurie Team - An overview of Lurie Center for Autism services and providers.
• Lurie Center Tour– A visual tour of what to expect when you visit our Lexington location.
• Safety at the Lurie Center – Information about our Safety Team and how they support our patients.
• Autism Care Questionnaire (ACQ) – A brief survey completed by a patient or the patient’s caregiver prior to a planned or unplanned medical visit.  The ACQ addresses non-medical needs of an individual with autism when receiving medical services.  Parents/guardians are encouraged to fill out the ACQ.
• Release of Medical Information
  
  • Español: Release of Medical Information
• Prescription Refills: How to Refill a Prescription
• Español: Cómo Solicitar Un Resurtido De Receta

Social Stories for Medical Procedures

• Social Stories - See our expansive list of social stories for medical appointments and procedures.

Autism Spectrum Disorder – General Information and Tips

• 30 Facts to Know About Autism Spectrum Disorder
• Diagnosing Autism Fact Sheet - (Autism Insurance Resource Center)
• Understanding the Three Levels of Autism (verywellhealth.com)
• Autism: What You Need to Know (Arabic)
• Restricted Interests in People with ASD
• The Differential Diagnosis of Repetitive Thoughts
• Repetitive and Ritualized Behaviors
• Helpful Organizations and Websites (for additional content and articles)

Adult Care - Aging Well With Autism

• Adult Autism Health Resources (harvard.edu) – An online resource for families and caregivers of adults with ASD.
• Clinical Care for Autistic Adults (harvard.edu) - A virtual on-demand CME course for clinicians and providers.
• For Providers: Office Visit Tips for Adult Patients with Autism

Transition Services and Supports

• DDS Autism Support Centers | Mass.gov  (Massachusetts Statewide Autism Support Centers)

• The Arc of Massachusetts

• Webinars & Trainings - The Arc of Massachusetts

• Federation for Children with Special Needs (FCSN)

• DESE Secondary Transition Resources and Materials - Special Education (mass.edu)

• Secondary Transition | Mass.gov

• MRC Transition Services For Students and Youth | Mass.gov

• Autism Housing Pathways – building roads to home

• www.gottransition.org
• Massachusetts Transition to Adulthood | Facebook
• College Readiness Assessment
• Guardianship Basics (video) (part of the MGfC Parenting Series in collaboration with the Blum Patient and Family Learning Center)

• Guardianship Evaluations Overview
• Guardianship - What You Need to Know (SPANISH)

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Lurie Center: Topics Related to Autism Spectrum Disorder

Our Lurie Center clinicians provide information on frequently discussed topics, treatments and assessments related to ASD. Please see below for more information.

Assessments

• ADI-R
• ADOS-2
• Neuropsychological Evaluation

Behavior and ASD

• Behavior Tools for Parents (Arabic - Chinese - Haitian Creole - Portuguese - Russian - Spanish)
• Behavior Tracking Sheet - Weekly
• Behavior Tracking Sheet - Monthly
• Limit Setting Tips (Arabic - Chinese - Haitian Creole - Portuguese - Russian - Spanish)
• Making a Behavior Chart (Arabic - Chinese - Haitian Creole - Portuguese - Russian - Spanish)

Complementary and Alternative Medicine (CAM)

• Parents' Guide to Biomedical Therapies
• Safe Dietary Supplement Use
• Glutathione
• Omega-3 Fatty Acids
• Prednisone
• Vitamin B6
• Evidence-Based Research

Gastroenterology and ASD

• Constipation: Healthy Bowel Movement Tips
• Bowel Movement Tracker

Medicine and ASD

• Medicine Safety Ideas for Families: At Home and in the Hospital (Arabic, Chinese, Haitian Creole, Portuguese, Spanish)
• My Child's Medicine List (Arabic, Chinese, Haitian Creole, Portuguese, Russian, Spanish)
• Pills: Learning How to Swallow a Pill
• Psychopharmacology 101 for ASD - Medication Summary

Neurology and ASD

• How to Help Someone If They Have a Seizure

Psychology and ASD

• Neuropsychological Evaluations

Related and Co-Occurring Conditions

• ADHD and Autism
• Anxiety and Autism
• How to Use Anxiety Strategies to Help Your Child with Autism 
• Bipolar Disorder
• Catatonia
• Depression 
• Epilepsy
• Sensory Processing
• Sleep Issues  (Spanish)

Sexuality and ASD

• Sexuality
• Preparing for Puberty
• Puberty

Special Education

• A Parent's Guide to Special Education (Portuguese, Spanish) Written by the Federation for Children with Special Needs in collaboration with the Massachusetts Department of Education
• Massachusetts Department of Elementary and Secondary Education - IEP Improvement Project Resources
• What to Expect During a Special Education Evaluation Meeting
  
  • IEP Meeting Tips (Arabic, Chinese, Haitian Creole, Portuguese, Russian, Spanish)

Technology and ASD

• Helpful Apps for Managing Symptoms of Anxiety and Depression

Vaccinations and ASD

• Vaccines
• Vaccine Tip Sheet for Parents/Caregivers - Recommendations for Individuals Getting a Shot/Vaccine
  • Vaccine Tip Sheet (Spanish) - Directrices y recomendaciones para las personas que se vacunan

Other Topics

• Autism and Grief
• Gender Identity and Autism
• Metabolic Testing
• Safety Resources for ASD ( Arabic - Chinese - Haitian Creole - Portuguese - Russian - Spanish)
• Supporting Siblings - Tips for Parents
• Therapy FAQ
• My Doctor Recommended Therapy, Now What?
• Understanding the ASD Profile in Females
• Visual Supports
• Water Safety Resources