Sarah Giddings, interim Executive Director, Williams Syndrome Association, Robin Pegg, EdDc, MEd, COTAL, ATP, ROH - WSA Education Consultant, and Camilla Fortunato, representing the generous gift from the Anthony Filippazzo Fund for Williams Syndrome Research that made this event possible.
On September 21, 2024, the MGH Williams Syndrome program invited parents and caretakers to attend an afternoon focused on issues of special relevance to children with Williams syndrome under 16-years-old. In addition to educational sessions, there was an opportunity to meet adults with Williams syndrome and learn from each other.
The MGH Williams Syndrome Program is a cooperative program of excellence between Massachusetts General Hospital, the Lurie Center for Autism, and Mass General for Children. This program was presented by the MGH Williams Syndrome Program and the Williams Syndrome Association (WSA).
We thank the Anthony Filippazzo Fund for Williams Syndrome Research and Advancement for their generous sponsorship and for making this event possible. We also thank the WSA for their support.
Event Photos
Special guest panelists included adults with Williams syndrome. Pictured from left to right: Ben Monkaba, Timothy Dineen, Rebecca Cleinman and Stephanie Caron, along with MGH Williams syndrome Program Co-Directors, Barbara Pober, MD and Robyn Thom, MD.
Barbara Pober, MD, Medical Geneticist, Co-Director, MGH WS Program, introducing Robyn Thom, MD, Psychiatrist and Co-Director, MGH Williams Syndrome Program discussing “Anxiety in Children with Williams syndrome."
Karen Levine, PhD, Psychologist, part-time lecturer in Psychiatry, Harvard Medical School presenting “Anxiety in Children with WS” via Zoom, along with Robyn Thom, MD.
Sarah Giddings, Interim Executive Director, WSA, presenting “The Mission of the WSA – How it helps you!”
Jill Pineda, PhD, Neuropsychologist, MGH Lurie Center for Autism, presenting “An Overview of Neuropsychological Testing & How to Navigate the IEP”.
