Jesse's story: Seeing beyond disability helps teen thrive
For the first 12 years of his life, Jesse Simon lived with an undiagnosed genetic disorder that puzzled many doctors. After some time, Jesse tested positive for Pitt Hopkins syndrome.
Contact Information
Boston, MAPhone: 617-726-6540
Lexington, MAPhone: 781-860-1700
Dr. Thibert received his B.S. in biology/psychology from the University of Notre Dame in 1994 and his MsPH in Epidemiology from the University of Massachusetts School of Public Health in 1996. After graduating from KCUMB in 2000, he did his Pediatric training at Henry Ford Hospital from 2000-2003, followed by his Pediatric Neurology training at the Floating Hospital and Children's Hospital Boston from 2003-2006. He then completed a fellowship in Pediatric Epilepsy/Clinical Neurophysiology at MGH from 2006-2008 and remains on staff there in the Pediatric Epilepsy Program. He is also an Assistant Professor at Harvard Medical School.
Dr. Thibert has a special interest in the treatment of epilepsy and epileptic encephalopathies in children with autistic spectrum disorders. He sees children and young adults with autistic spectrum disorders and epilepsy at the Lurie Center and, if indicated, performs long-term EEG monitoring at MGHfC as part of the diagnostic process. A full range of treatment options including dietary therapy for epilepsy is available.
Dr. Thibert is the Director of the Angelman Syndrome clinic and MGHfC/Lurie Center and is on the Scientific Advisory Committee of the Angelman Syndrome Foundation. He is the Director of the Dup15q Center at MGHfC/Lurie Center and is on the Professional Advisory Board of the Dup15q Alliance. He is also the Co-Director of the newly founded Pitt Hopkins Clinic.
Clinical Interests:
Treats:
Mass General for Children: Pediatric Epilepsy Program
55 Fruit St.
Yawkey Center for Outpatient Care
Suite 6B
Boston, MA 02114
Phone: 617-726-6540
Mass General Lurie Center for Autism
1 Maguire Rd.
Lexington, MA 02421
Phone: 781-860-1700
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For the first 12 years of his life, Jesse Simon lived with an undiagnosed genetic disorder that puzzled many doctors. After some time, Jesse tested positive for Pitt Hopkins syndrome.
The care provider is very helpful, very knowledgeable, has always helped us out with what's needed for my daughter from day one. We're very happy.
He's very compassionate and experienced and willing to explain things and answer questions.
Dr. Thibert is a very caring and supportive and knowledgeable, wonderful neurologist for my twin boys with autism. He is always wonderful at appointments, goes over everything, reviews the notes from last time so he always knows what's going on with my twins, and also has good recommendations for future blood tests, tests, and other issues that my ... Read More
The Dr always listens & provides information that is easy to understand.
Dr. Thibert is the best
Great personality and helpful in educating patients and their families...helpful, courteous, patient...we love him!
Dr. Thibert is always a pleasure to work with. Listening skills and responsiveness to my daughter's medical needs are top-notch. He is the best!
Dr. Thibert is the best doctor. I don't really think I have much more to say than that, but I just I hope you guys know like he makes the biggest difference in our lives. We always look forward to seeing him. He treats us with so much respect. You can tell how much he absolutely loves his patients. He is hands down the most loving, caring, and ... Read More
Dr Thibert has as o much empathy, respect for our son and assures us he will help us get through this challenging time.
Dr. Thibert was a great doctor. He goes very detailed on stuff. He makes sure that I understand what I need to understand and he always makes sure that when you go to see him that you go out with a positive attitude and that you know of all the worries and all the things that you are worried about that they're no longer as worriable as what you ... Read More