Patient Resources for the Pediatric Cystic Fibrosis Center at MGfC
General Information
Newborn Screening and Sweat Tests
Chest Physical Therapy
View the full collection of patient resources on chest physical therapy for cystic fibrosis.
Lung Transplant
Below are links to a series of YouTube videos by Anita St. John, RN, AE-C, and Beth Bartley, MD, that provide everything you need to know about the lung transplant process.
Tests and Procedures
- Lung Transplant Evaluation: What You Need to Know
- Lung Transplants for Cystic Fibrosis: What You Need to Know
Mental Health
If you are struggling with a mental illness, such as depression or anxiety, know that you are not alone. Many people with cystic fibrosis struggle with mental health. Here are a few resources where you can learn more about cystic fibrosis and mental health and read people’s stories.
From the Cystic Fibrosis Foundation®
- Mental Health
- Peer Connect
A support network for people with CF over age 16 and their families
From other organizations
- Psychosocial Support Programs
Programs and classes for people with CF over age 16 and caregivers - CF News Today®
- American Psychiatric Association®
General information about mental health
Sexual and Reproductive Health
The following resources provide an overview of important sexual and reproductive health information for people with cystic fibrosis, including puberty, contraception and fertility.
- Young Women’s Health ® (Cystic fibrosis information is under “C” of the Index)
- Reproductive Health and Fertility (from the Cystic Fibrosis Foundation®)
College and Cystic Fibrosis
Going to college with cystic fibrosis is a big step, but it is doable! Read and listen to the stories of those who have done it before you. Although not listed here, social media is a great way to learn about the experiences of fellow young people with cystic fibrosis.
From the Cystic Fibrosis Foundation®
From other organizations
- Breathe In® (a podcast from Gunnar Esiason, a teen with CF, and a great resource to learn about college and many other topics in the CF world)
- Cystic Fibrosis News Today®
Alcohol and Cystic Fibrosis
If you ever find yourself in a position where you may drink alcohol, it is very important to understand the cystic fibrosis-specific consequences of drinking alcohol, such as interactions between alcohol and other medications and how alcohol affects the many parts of your body (liver, brain, lungs, etc). Check out these resources to find out more about alcohol and cystic fibrosis. If you have questions, ask your care team.
From the Cystic Fibrosis Foundation®
From other organizations
- Nutrition Leaflets (from the Cystic Fibrosis Trust®)
- Harmful Interactions From Mixing Alcohol with Medicines (from the National Institutes for Health®)
Pediatric Health Information Library (PHIL)
Find educational materials on a wide range of pediatric health topics and specialties.