Other Resources
Jett Foundation for Duchenne Muscular Dystrophy
Our clinic is also supported by a partnership with the Jett Foundation, which has created the Jett Foundation for Duchenne Muscular Dystrophy Program at MGHfC. This effort will enhance the infrastructure of our clinic as well as help develop a clinical trials arm to our clinic to offer cutting-edge research based opportunities for our patients.
Muscular Dystrophy Association
The Pediatric Neuromuscular Clinic is a designated Muscular Dystrophy Association (MDA) clinic and offers innovative treatments and resources for pediatric patients/families that are affected by more than 40 neuromuscular disorders.
"Dystrophinopathies"
2009 Mellon,M. & Tseng, B. - Updated article
Clinical Trials
Information about DMD/BMD clinical trials could be explored by searching on this website for eligibility criteria, search Duchenne or Becker muscular dystrophy.
DuchenneConnect
DuchenneConnect has been created to serve as a central hub linking the resources and needs of the Duchenne/Becker muscular dystroph community: young men with Duchenne; their families and caregivers; and the provider community: clinical care providers, policymakers, industry professionals and the medical research fields.
Parent Project Muscular Dystrophy
Leading the fight to end Duchenne
The United Dystrophinopathy Project
An online Duchenne and Becker muscular dystrophy patient registry.
Treat-NMD: Neuromuscular Network
Advancing diagnosis, care and treatment for people with neuromuscular diseases around the world.
Evaluating Web-Based Health Resources
The number of Web sites offering health-related resources—including information about complementary and alternative medicine (CAM)—grows every day. Many sites are useful, but others may present information that is inaccurate or misleading.
