Employee Benefits Study
Resources for Employees and Families
Children With Special Needs and the Workplace:
A Guide for Employees
Full Guide | Executive Summary
List of Helpful Websites for Employees and Families
Information about public and private services and programs is critical for parents caring for a child with special needs. Without it, they are often unable to acquire critical supports for both themselves and their child. There are many sources of information available through the Internet. Though this information is often helpful, it can also be overwhelming when trying to narrow a search to the information that is most relevant for a family.The following list is a sampling of websites that parents who have children with special needs may find helpful. It is not intended to be exhaustive but rather a good starting point that will also guide users to other equally useful sources of information.
Alliance - a national network of state parent centers providing information and training for families of children with disabilities.
http://www.taalliance.org/
Children’s Public Health Insurance - information on children's public health insurance.
http://www.insurekidsnow.gov/
DisabilityInfo.gov - information on Federal government resources relating to disabilities.
http://www.disabilityinfo.gov/
Family Village - information on a wide range of disability topics relevant to families.
http://www.familyvillage.wisc.edu/
Family Voices – national grassroots organization of families and friends of children with special needs.
http://www.familyvoices.org/
Federation for Children with Special Needs - provides advocacy and support for families in the areas of health, education, early childhood, and transition for children and young adults with special needs.
http://www.fcsn.org/
Federation of Families for Children’s Mental Health - a national organization with state chapters, provides families with support, information, and resources for children with mental, emotional, or behavioral needs.
http://www.ffcmh.org/
Genetic Alliance - an international coalition of individuals, families, professionals and genetic support organizations.
http://www.geneticalliance.org/
Exceptional Parent - a monthly publication and library for families Maternal and Child Health Bureau of the U.S. Department of Health and Human Services. http://www.eparent.com/
Learning Disabilities Association of America - provides information, resources and support to families about learning disabilities.
http://www.ldanatl.org/
Maternal and Child Health Bureau (MCHB) of the Department of Health and Human Services – the nation’s oldest Federal program serving mothers and children. http://www.mchb.hrsa.gov/
National Fiesta Educativa Inc. - helps Latino families care for their children with special needs through information, education, training, and referral. http://www.fiestaeducativa.org/
National Information Center for Children and Youth with Disabilities
http://www.nichcy.org/
Parent-To-Parent Programs – information, links, and supports for parents and families of children with special health needs.
http://www.beachcenter.org/
SNAP, Inc. (Special Needs Advocates for Parents) - offers a number of services to parents who have children with special needs to help them make important decisions in planning for their child’s well-being as well as to provide information, resources and networking opportunities.
http://www.snapinfo.org
State Title V Programs - list of all state Title 5 program directors and how to contact them.
http://cshcnleaders.ichp.edu/TitleVDirectory/PDF-Files-2003/CSHCNDIR 10-1-03.pdf
